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Posts tagged ‘Asperger’s’

It’s a Wrap

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Well, that was fun, one of the best summers I’ve had in a long time. It ended for all intents and purposes when Mae returned to school today. She saw one of her classmates from last year as we were walking into the school building. She promptly ditched me and went about her business. I think she said bye, but I’m not sure.

Jay has two more weeks of camp, and I expect a similar ditching from him when his school opens after Labor Day. Over the summer, his attitude matured more than his body. He’s still a sweet kid over all but he developed a smart mouth somewhere along the way this summer.

Ahhh, it was a sweet summer. We rested, we took it easy. I took it easy. That’s unusual for me. I did it and I’m proud of myself. I read at home, not just on the train during my commute. I did only one day of yard work. The yard was plain and boring, and I was ok with that; fortunately, Hubby kept the grass at a decent level.

I baked for no reason or special occasion. I even took naps on a couple of days. I started the summer with a plan for the kids to have 20 minutes of study time per day. I wasn’t a stickler about it, so they had 20 minutes most days. And, most days, I didn’t check the work to see if it was correct. Bless their hearts, they didn’t complain much. They acted like studying during the summer was normal. Mae especially surprised me because her summer workbook was all math. I asked her to focus on fractions, multiplication, and division. She struggled most with fractions. Still, every time I suggested that she go to the multiplication or division sections of the book, she said she wanted to keep working on the fractions. That’s my plucky girl.

She and Jay enjoyed their camp at Jay’s school. Since it’s Mae’s old school, she got to see some of her old classmates. Jay is easy; if there are Legos available, he’ll be fine. I thought for sure Mae would be bored out of her mind. Nope. Day after day, she told me camp was fun. In fact, she didn’t have a meltdown until the last day. Some girls yelled at her because she bumped into one of them. She thought they were being mean to her and she said they had been mean to her before, for no reason. I could tell from some of her daily reports that she’s still learning how to pick up on the social cues and keep her distance from children who don’t like or accept her. Otherwise, it appears that she got along with her fellow campers ok.

The kids had swimming lessons, and Mae had Tae Kwon Do and Jay drum lessons. It was manageable, no overscheduling. We actually had several free Saturdays and Sundays, sometimes both in the same weekend. That was a beautiful, lovely, awesome thing.

One of the best parts of summer was that Mae had no hypersensitive reactions to bug bites. Like the doctor said, she outgrew the sensitivity (it appears). This was the first summer since she was about 3 years old that the mysterious brown spots and sores did not appear.

We all needed that relaxed break; last school year was grueling. I think I’m ready for 4th and 1st grades. Deep breath in . . . .

Spread Thin

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I would have written this post days ago were it not for Ruzzle, that addictive word game that has become my go-to mental break.

Work was on fire the past two weeks. I gave away hours of personal and family time in the evenings and weekends to keep up with the demands. I went to bed exhausted and woke up groggy and still exhausted.

Mae went back to therapy and social skills training last week, after a break of over one year. Overall, the school year has been great compared to past years. This is still a critical time. She’s made some friends and she seems to have a lot of fun with them . . . until someone doesn’t want to play tag. Then, the crying begins and then the teasing about the crying begins. Last week, she decided to give an upper cut to some boy who wouldn’t stop mocking her crying. She told me that night that no one likes or wants her anymore because they won’t play tag with her.

It’s the self-degradation and the hitting that worry me. I’m afraid that her classmates will stop wanting to play with her at all because of how she reacts when they want to do something other than what she wants to do.

So, we’re continuing to work on how to play what others are playing or learn to move on and play with someone else, and how to handle disappointments and disagreements.

Before tonight’s appointment, Mae said, “Today is a perfect day to go to Dr. [M]. I have a bunch of stuff to talk about. Last time, she did most of the talking. This time, I think I should do most of the talking.” And talked, she did.

I was unsure that more one-on-one therapy would be beneficial, but I’m glad we went. I think it’s good in the long run that Mae has a practice of going to safe places and people when something is troubling her. Unfortunately, we have a scheduling issue. Our choices now are 5 pm or 8 pm appointments. So, we’ll have to postpone more sessions until the therapist has different openings or I can change my work schedule.

Mae thinks social skills training is fun because she gets to play with other kids. The group meets on Saturday mornings, so the scheduling is working for us right now. She is the only girl in the group, which sucks. She seems to have more trouble playing with girls, and I was hoping for some practice in that area.

In better news, Mae and I had an awesome time for her birthday in NYC. It was a fun-packed two days. We got to do everything on our list and we made a new list of things to do on the next trip. We’ve already made a photo book, which is a birthday tradition, for the trip. She asked to add the captions this time, which took some letting go on my part. I had to tell myself, “She’s nine. Let her tell her story in her own words (and edit it before ordering :))”.

I started a 4-week cake decorating class. I didn’t do too bad on my first cake. The kids recognized it right away as an Angry Bird, and that’s all the validation I need. I thought it was much better than the “my family” foursome of mini cakes I made for Mae’s birthday. I thought Jay should have been easily recognizable with his two missing teeth and Mohawk. Hubby said that his cake should have had hair although he doesn’t wear any in real life. Oh well, I’m learning.

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Fade to Black

watching fireworks

As 2012 fades to black, I think back on how blessed we have been this year and in previous years. Life hasn’t been perfect or stress-free. All-in-all, though, it’s been darn good.

I had a glorious time in SC with my immediate and extended families during our short winter vacation. We had a Christmas party on the Saturday before the holiday. The food was good, the games were fun, and spirits were high. One of the things I love most about my big (my mother is one of eleven), crazy family is that we manage to consistently have a genuinely good time, without the drama that is typically associated with big gatherings and without the help of alcohol (LOL).

Mae and Jay got to see all of their first cousins. They played well together, and I’m especially proud of Mae. I think she managed to avoid falling out with her big cousin, who is just 9 months older, even once. Usually, Mae whines or has a meltdown about not being able to play with her cousin’s things or something along those lines. No meltdowns at all on the trip. Growth is a beautiful thing, and she’s been doing plenty of it physically and otherwise.  Lately, she’s been asking questions on topics like periods and the N-word.  She’s becoming less and less of a “little girl,” a term she now detests.

Last week, Mae told me that she wonders if she should tell her friends that she has Asperger’s.  She said, “I don’t know what they’ll think of me.”  I told Mae that she can tell her friends if she feels comfortable, and that it’s more important to focus on what she wants her friends to understand about her and show them who she is without using a label.  I told her that the doctor said she’s barely on the spectrum, so Asperger’s may not be the best way to explain who she is.   Her question is an interesting question given recent media coverage of Asperger’s in relation to the Newtown tragedy.  Mae is aware of the tragedy because her school principal made an announcement the next school day.  She’s unaware of the media coverage and how some have attributed the shooter’s behavior to Asperger’s.  We’re not much of a news-watching household, and that’s a good thing.

After we returned home from SC, we buckled down to Mae’s homework.  She actually completed some of it while we were in SC, bless her heart, with little resistance. She has had so much homework over the past few weeks, more than I could have ever imagined for a 3rd grader.  We spent hours each day last Thursday through Sunday working on a book about the planets. There is a required 15-page minimum with limited use of illustrations, which Mae had to create herself. (Thank you, Microsoft, for Insert>Shapes.)

Last night, as Mae put the finishing touches on the book,  she told me that she enjoyed working on it, that she had looked forward to it.  She’s really had a good attitude about this homework business.  Hubby and I have been the ones grumbling for weeks.  I’ve been trying to think of a way to complain to the school, but I don’t know if it’s me or them that’s being unreasonable.  I wanted an accelerated and advanced curriculum, so maybe I should keep my mouth shut. What I didn’t know was that we’d be trading loads of personal time and family time, weekends and holidays included.

Mae worked so hard on her planets book and still needs to make progress on her science fair project, so much so that I can’t even bring myself to ask her to write thank-you notes for Christmas gifts.  That’s normally one of our projects over the winter break.  I may saddle Jay with writing for both of them, if I can get him to be still long enough. He has been a ball of energy, literally running in circles around the house, for no apparent reason.  He’ll go round and round the kitchen table.  He’s in constant motion, still at five and a half.  I don’t remember his sister being this way.

Yesterday, I surprised him when I told him that I like candy cereal too, but I don’t eat it.   He said, slowly, “That’s strange.”  Then, he added, “If you like something, you should just eat it.”  Oh, my dear boy, I have fillings in the double digits and a pouch to prove that I have done plenty of that.

I’ve got to work on my “just eat it” problem in 2013.  I’m not big on resolutions, but I do need to create a new exercise plan and cut back on sugar.  This year was not good for me in terms of healthy living.  I tried to eat healthy (though the green smoothie project didn’t work for me; I decided that eating should involve chewing.  I like chewing.) and exercise (I quit yoga after one session because one full hour of yoga is just too much).  I got off track, mostly due to exhaustion in the evenings from hard, long days at the job I started in March, and then curtailing weeknight gym visits to help with homework in the evenings.  On too many evenings, I ate salty or sweet snacks for dinner instead of a proper meal.

Despite exercising less and eating more than I should have, I’m ending 2012 with a pat on the back for myself.  I’ve already ordered our photo album for 2012, a year’s worth of pictures bound in a hard cover book.   It’s an annual project that I sometimes don’t get to until the spring.  And, I’ve ordered our Happy New Year photo cards to send to family and friends.  I think our 2012 cards went out in February last year.  I feel like I was more organized in 2012.  Also, I spent more time with the kids, making more of an effort to do fun stuff on the weekends whenever we could.  House and yardwork suffered, but I have no regrets about that.

So, I’m good.  We’re good.  2013 will be good.

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